The big talk around the hospital was the snow storm coming through late Wednesday so we were glad that we didn't have any traveling to do. Being up on the 12th floor we watched the clouds roll in and the big puffy snow flakes begin to fall. Just above us we could hear alot of activity from the helicopter --we had just seen a brand new baby brought in the PICU as Haley was being transported to the 12th floor. The nurses said it was a busy day for that particular aircraft--which they never like to see.
We had another surprise visitor last night--a good friend of Jeff's from seminary and fellow music minister, Daron Caswell from Hannibal, MO had come to check on us and see Haley--also on his way to pick up Sandy, his wife who had flown back to St. Louis from seeing family. It was great to see another familiar face and to visit for a short time. 
This morning the ground was covered with about 3-4 inches of snow as we made our way back to the hospital. Haley had a good night and for the most part had not noticed that we had not been there. She opened up 3 more cards that came in the mail and also some gifts from Nana--but it was not the gifts that made her light up...
Jeff asked his mom, Trudy to download Skype onto her computer (it's free) and we were able to connect with her computer and be able to see her, Brynna and Roslyn on our computer screen and us on theirs--technology is wonderful!! Haley just lit up and it was the first smile and laugh we had seen/heard in 3 days! It was great to see them and for Haley to talk to her sissies--Brynna enjoyed seeing and talking to Haley and they waved at each other and chattered for quite awhile. By the way, the girls are doing great for Nana--better than they do at home! :) Tonight we plan on doing it again so Papa and Haley can see each other before bedtime.
Today, Haley was taken off of the fentanyl at noon and now is on oral valium every 6 hours but her last dose of that will be tonight at 6pm. Her incision looks wonderful--no redness at all, but she cries fairly often saying "it hurts" and asks for her back to be rubbed. The nurse said that in the 5 years she's worked here at Children's she has NEVER seen a child come out of a rhizotomy surgery with an infection--so we were encouraged about that. So far she's been able to keep down a few bites of oatmeal, some french fries, mac and cheese and some chicken noodle soup--so, we're sure hoping she can be released from her IV perhaps this evening!
The nurses have been wonderful and are very skilled (which is nice being on the neuro floor as they're used to kids like Haley) and they came in and gave her a much needed bath and shampoo and massaged her with lotion--which Jeff and I envied! She's now in her own "Little Mermaid" PJs and zonked out.
Tomorrow will be busier and she should be more awake as the drugs are taken away. Physical therapy will begin friday evening and she'll be able to finally sit up--which will be wonderful since she hasn't been able to see the tv lying flat or to even sit on the potty--which is just driving her crazy that she has to use a diaper.
Each day continues to get better and we are grateful that the Lord has kept her close to Him. We still meet families every day with unique circumstances and try to share the Lord with them if the opportunity arrives. Thanks so much for the phone calls, cards and emails and especially the prayers!
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